Every time

Every time we lose a friend to circumstances or disease we cannot overcome or control (we’re looking at you cancer), we pause. We pause because we are losing friends, fathers, mothers and children to something we absolutely have control over – death that can be prevented. People we all care about are dying because they are languishing on the organ donation waiting list. This is just so wrong and makes us sad, and yes, mad.

It is beyond our comprehension why this is an ongoing issue. When we die, we will give our organs to someone who can use them…..to live. Why doesn’t everyone have this plan?

You can make a difference for THOUSANDS of Canadians waiting for an organ donation. Right now, we’re trying to come to grips with what we cannot control. Organ donation doesn’t fall into this category. Sign up.

#jimshearts #beadonor

jim marah 2016

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You Aren’t Going to Like This

Guess what? The dismal state of organ donation is on you. More than 75% of you have not signed up to be an organ donor. What more do you need?

Yes we need education. Yes we need awareness building. Yes we need better collaboration across our provinces.

But seriously – you KNOW this is an issue. There isn’t a month that goes by that there isn’t a high-profile (or low-profile) story where someone needs an organ transplant. Why haven’t you done anything about it? Does it have to be a story where you are personally involved? That’s just ridiculous.

Here’s an example:

Not too long ago, the owner of the Ottawa Senators (Eugene Melnyk) shared his story of his journey for a liver transplant. It was big news! Even people who never read a newspaper heard about this. So why is Ottawa hovering around a 35% registration rate?

And another one:

In 2012, Hélène Campbell (of Ottawa) lived in Toronto while she waited for and recovered from her lung transplant. She brilliantly shared her poignant story. She was on Ellen for goodness sake! Why (oh why) is Toronto at a dismal 20% registration rate? You were hoping for Jimmy Fallon?

(Not to mention of course Jim’s story!!!)

We know that this is simplifying things (a lot) – but without you, there is no hope. You cannot pass the buck on to anyone else. Step up, and sign up.

For the too many people waiting on the organ transplant list all across our county and for everyone’s future:  sign up to be an organ donor today in Ontario and across Canada.

It is on you. Whether you like it or not.

#jimshearts #beadonor

waiting

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Two Years – We’re Still In This

We’re not sure what we thought would happen when we started this blog two years ago. What did happen though, is that we’ve reached 68,000 people to spread the word about organ donation, written over 100 blog posts, met a lot of amazing people, and watched Jim and his family receive the gift of life.

What didn’t happen? We didn’t move the yardstick for organ donation registration very far. Over the last two years we’ve used words like “abysmal” and “embarrassing” – sadly, they are still true.

But do you know what else happened over the last two years? Over 500 people died while on the waiting list (that still has over 4500 Canadians on it). This is why we’ll keep at it and try to find new ways to inspire you to sign up to be a donor. If you’ve got a bright idea, please let us know.

By the way, if you are not in Ontario click here to find out how to sign up to be a donor in your province: https://www.blood.ca/en/organs-tissues/donating-future.

Be inspired by Jim’s story. #beadonor #jimsheartsjimshearts

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Death. There – We Said It.

Benjamin Franklin said that there were only two things certain in life: death and taxes. Across our great country today, we are sure there are zillions of conversations about taxes. Reducing them, raising them, paying them and blah, blah, blah. When talking about death however, we clam up, try to change the subject, glare accusingly at the person who dared to bring it up.

But why? It’s going to happen. To everyone. And truly, we are not minimizing the impact or personal devastation; losing one that you love is the hardest thing a person can endure – but it does remain a certainty.

We think that this ingrained part of our society is holding many of you back from signing up to be an organ donor. Because there is no talk about death, there is no opening to talk about what your end of life opportunities could be – namely saving someone else’s life.

Over 4500 Canadians need you to be bold and step outside your comfort zone. Talk to your family about being an organ donor after you die. Talk to your friends about it, and maybe they’ll talk to their families. Bottom line – talk about it.

This is National Organ and Tissue Donation Awareness Week – there is no time like the present to contribute to this movement. Be a donor. Bring it up in conversation – we dare you.

#jimshearts #NOTDAW

j and m 2016

 

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April Showers

So, April is Organ Donation Awareness Month. To be honest, we’re not sold on it. Maybe that’s because we know that the need for awareness is so critical and the situation so dire, that one month isn’t going to cut it.

Sure, we know that the idea behind the designated month is to draw some extra attention, to focus efforts and to time some activities. We will probably even get involved in some of them. Our worry is that those who don’t quite get it, those who haven’t signed up to be donors, won’t think about it again until April rolls around next year. And what if they miss the hype? After all, April is a designated month for many other issues.

There are thousands waiting for the gift of life today. There will be equally as many, and probably more in May, October and January. For a truly unacceptable number of families, the wait is too long. Maybe “April showers” represents the frustration that is organ donation in Canada – the tears of despair, fear, and grief? We look forward to an April Organ Donation Month where we consider the rain as nature intended: the hope that is spring renewal. We can get on board with that.

The urgency is great but the requirement on you is small: sign up to be an organ donor!

#jimshearts #beadonor

green_ribbon_hope

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Stepping Up and Sticking To It

Jim and Marah and their entire family continue to ride the roller coaster that is organ donation in Canada. Apparently it’s not enough to wait for more than two years for a life-saving heart transplant, but you have to navigate the devastating complications afterwards too. Through it all, they continue to advocate for organ donation – “paying it forward” as they would say.

Jim and Marah stepped up a long time ago to provide a face to the organ donation challenge in Canada. They did it not just to support Jim, but for the 4500+ people waiting for the gift of life, and the 1600+ that will be added to the list every year. It’s not a little thing to open up your life, at the most challenging time, for the world to see. They stepped up in a big way, and are sticking to it.

We’d like to focus for just a moment on one fact: more than 1600 people will be added to the waiting list for an organ donation this year. This could be you or someone you love. It is time for you to step up! Take the 2 minutes to sign up to be an organ donor.

#jimshearts #beadonor

Trillium Small_1

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A Hail Mary Pass to You

Dear Mr. Owens, Mr. Ochocinco, Mr. Bush, Mr. Tebow, Mr. Rodgers, and Mr. Strahan:

With “Wildcard Weekend” upon us in the NFL, we were reminded of one of the origins of the “Hail Mary” pass. That’s kind of what this letter to you feels like. We are reaching out to you as Roger Staubach did in 1975 when he threw the game-winning pass to Drew Pearson, closed his eyes and said a Hail Mary.

Maybe this will be a game winner too – but the winner will be everyone and not just the Dallas Cowboys! Will you pick up this ball that we are passing to you and consider lending your considerable reach toward getting people to sign up to be organ donors? You may be unaware – because most people are – that more than 123,000 Americans and over 4,500 Canadians are waiting for the gift of life; for the gift of organ donation.

It’s one of those things that people don’t talk about. If you were to talk about it though, maybe people would finally listen? Right now, because people are not talking and listening, they are not signed up to be organ donors. This means that people die – every day – needlessly.

We’ve been trying to get the message out through the story of Jim Maveety and his family (jimshearts.com). Would you take a moment to read about it? Then take even less than a moment to get the message out?

The message: SIGN UP TO BE AN ORGAN DONOR TODAY!

In America: http://www.americantransplantfoundation.org/how-to-help/become-a-donor/

In Canada: https://blood.ca/en/organs-tissues and in Ontario: www.beadonor.ca/jims-hearts

Our pass has been made, and we’ve closed our eyes – we can only hope it’s complete. Thank you for your consideration.

#beadonor #jimshearts

sunshine marah and jim

 

 

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