A few years ago (!) we posted about National Donor Day (US) being shared with Valentine’s Day. We thought it was pretty awesome then, and still think so! The gift of life that a donor gives to someone waiting for an organ transplant truly is a gift of love. We can’t think of anything more touching and amazing.
This Valentine’s Day, consider the ultimate gift by making your intentions known to those close to you, and by signing up to be a donor. (Outside Ontario: sign up here). Give the gift of love this Valentine’s Day.
#jimshearts #beadonor #nationaldonorday
A few people have shared with us France’s decision to make organ donation automatic. We’re impressed, for sure, but we also understand that this isn’t the fix to fix all problems.
It’s like our own Bill C-316, “An Act to amend the Canada Revenue Agency (organ donors)”, and give Canadians the opportunity on their annual tax return to indicate their desire to be added to their province or territory’s organ donor registry in a convenient, effective and efficient manner. (Yes, please do sign the petition). This Bill is super-awesome, but again, not the magic elixir.
Bottom line, these initiatives are fantastic in that they are moving the seemingly heavy yard stick of organ donation….but without EDUCATION, they both fall flat.
You see, without educating our population about organ donation, and the necessity to talk about your wishes with your family, things can still go awry. If your family is faced with the decision upon your death to donate your organs and they don’t know of your wishes (or at least understand the importance of organ donation and the gift of life) they can refuse to do so. Unfortunately this happens a lot.
Be the educator. Start at your kitchen table tonight – and we’ll go from there.
Ok. So we hadn’t really considered organ donation from this angle before, and now our minds are a bit blown. You know how we keep asking you to sign up to be a donor and to talk to your family about it? We had been thinking that your family could trump your wishes if they didn’t know your intention (or didn’t agree with it). And that is still true. The mind-blowing part is that this is only because of the sensitive nature of organ donation (not that this is a small thing)…..legally, you have consented to be an organ donor and this is binding.
Don’t get us wrong. We absolutely get it. When faced with the worst news of your life, no one wants to make things worse for you by pushing legal stuff on you. But this fact, that someone who has signed up to be an organ donor….has made a binding decision….can this be the basis of the change we need to see?
What if we elevated that act of signing up to be an organ donor to be the big deal it is meant to be? So this is the only decision? So when a family is faced with devastating news, the decision is simply understood?
Simple, it is not. But the possibilities this introduces are amazing. If you want to know more on this topic, check out this new article by Maeghan Toews and Timothy Caulfield. It has influenced us to reconsider how to push for change.
“Drop a pebble in the water: just a splash, and it is gone; But there’s half-a-hundred ripples circling on and on and on…” (James W. Foley) This poem, though written in 1911, could really have been written about Jim and Marah and their dedication to paying it forward through organ donation awareness-building.
Jim and Marah have allowed us to tell their story for well over two years. During this time we shared their hideous wait for a new heart, and the challenges (that still remain) in recovery after they received their miracle. Their willingness to share, to throw their pebble in, has touched almost 70,000 people through jimshearts.com and 500 people have specifically told us that they have signed up to be organ donors because of what they’ve learned. (We know there are more!).
Still, sometimes it does only feel like a ripple, because we know there are so many people waiting for their call and some who will wait too long and never receive their miracle. This frustration, together with the real trials of recovery are enough to make a person want to take their pebble and go home. Jim and Marah remain dedicated and as open and honest about their story as ever.
Thank you for sharing your story – you are making a difference!!
Be inspired. #beadonor #jimshearts
Every time we lose a friend to circumstances or disease we cannot overcome or control (we’re looking at you cancer), we pause. We pause because we are losing friends, fathers, mothers and children to something we absolutely have control over – death that can be prevented. People we all care about are dying because they are languishing on the organ donation waiting list. This is just so wrong and makes us sad, and yes, mad.
It is beyond our comprehension why this is an ongoing issue. When we die, we will give our organs to someone who can use them…..to live. Why doesn’t everyone have this plan?
You can make a difference for THOUSANDS of Canadians waiting for an organ donation. Right now, we’re trying to come to grips with what we cannot control. Organ donation doesn’t fall into this category. Sign up.
Guess what? The dismal state of organ donation is on you. More than 75% of you have not signed up to be an organ donor. What more do you need?
Yes we need education. Yes we need awareness building. Yes we need better collaboration across our provinces.
But seriously – you KNOW this is an issue. There isn’t a month that goes by that there isn’t a high-profile (or low-profile) story where someone needs an organ transplant. Why haven’t you done anything about it? Does it have to be a story where you are personally involved? That’s just ridiculous.
Here’s an example:
Not too long ago, the owner of the Ottawa Senators (Eugene Melnyk) shared his story of his journey for a liver transplant. It was big news! Even people who never read a newspaper heard about this. So why is Ottawa hovering around a 35% registration rate?
And another one:
In 2012, Hélène Campbell (of Ottawa) lived in Toronto while she waited for and recovered from her lung transplant. She brilliantly shared her poignant story. She was on Ellen for goodness sake! Why (oh why) is Toronto at a dismal 20% registration rate? You were hoping for Jimmy Fallon?
(Not to mention of course Jim’s story!!!)
We know that this is simplifying things (a lot) – but without you, there is no hope. You cannot pass the buck on to anyone else. Step up, and sign up.
For the too many people waiting on the organ transplant list all across our county and for everyone’s future: sign up to be an organ donor today in Ontario and across Canada.
It is on you. Whether you like it or not.
We’re not sure what we thought would happen when we started this blog two years ago. What did happen though, is that we’ve reached 68,000 people to spread the word about organ donation, written over 100 blog posts, met a lot of amazing people, and watched Jim and his family receive the gift of life.
What didn’t happen? We didn’t move the yardstick for organ donation registration very far. Over the last two years we’ve used words like “abysmal” and “embarrassing” – sadly, they are still true.
But do you know what else happened over the last two years? Over 500 people died while on the waiting list (that still has over 4500 Canadians on it). This is why we’ll keep at it and try to find new ways to inspire you to sign up to be a donor. If you’ve got a bright idea, please let us know.
By the way, if you are not in Ontario click here to find out how to sign up to be a donor in your province: https://www.blood.ca/en/organs-tissues/donating-future.
Be inspired by Jim’s story. #beadonor #jimshearts
Benjamin Franklin said that there were only two things certain in life: death and taxes. Across our great country today, we are sure there are zillions of conversations about taxes. Reducing them, raising them, paying them and blah, blah, blah. When talking about death however, we clam up, try to change the subject, glare accusingly at the person who dared to bring it up.
But why? It’s going to happen. To everyone. And truly, we are not minimizing the impact or personal devastation; losing one that you love is the hardest thing a person can endure – but it does remain a certainty.
We think that this ingrained part of our society is holding many of you back from signing up to be an organ donor. Because there is no talk about death, there is no opening to talk about what your end of life opportunities could be – namely saving someone else’s life.
Over 4500 Canadians need you to be bold and step outside your comfort zone. Talk to your family about being an organ donor after you die. Talk to your friends about it, and maybe they’ll talk to their families. Bottom line – talk about it.
This is National Organ and Tissue Donation Awareness Week – there is no time like the present to contribute to this movement. Be a donor. Bring it up in conversation – we dare you.
So, April is Organ Donation Awareness Month. To be honest, we’re not sold on it. Maybe that’s because we know that the need for awareness is so critical and the situation so dire, that one month isn’t going to cut it.
Sure, we know that the idea behind the designated month is to draw some extra attention, to focus efforts and to time some activities. We will probably even get involved in some of them. Our worry is that those who don’t quite get it, those who haven’t signed up to be donors, won’t think about it again until April rolls around next year. And what if they miss the hype? After all, April is a designated month for many other issues.
There are thousands waiting for the gift of life today. There will be equally as many, and probably more in May, October and January. For a truly unacceptable number of families, the wait is too long. Maybe “April showers” represents the frustration that is organ donation in Canada – the tears of despair, fear, and grief? We look forward to an April Organ Donation Month where we consider the rain as nature intended: the hope that is spring renewal. We can get on board with that.
The urgency is great but the requirement on you is small: sign up to be an organ donor!
Jim and Marah and their entire family continue to ride the roller coaster that is organ donation in Canada. Apparently it’s not enough to wait for more than two years for a life-saving heart transplant, but you have to navigate the devastating complications afterwards too. Through it all, they continue to advocate for organ donation – “paying it forward” as they would say.
Jim and Marah stepped up a long time ago to provide a face to the organ donation challenge in Canada. They did it not just to support Jim, but for the 4500+ people waiting for the gift of life, and the 1600+ that will be added to the list every year. It’s not a little thing to open up your life, at the most challenging time, for the world to see. They stepped up in a big way, and are sticking to it.
We’d like to focus for just a moment on one fact: more than 1600 people will be added to the waiting list for an organ donation this year. This could be you or someone you love. It is time for you to step up! Take the 2 minutes to sign up to be an organ donor.