Where is your heart Canada?

Here’s the good news: 90% of Canadians claim that they support organ donation and 95% of Canadians would accept an organ donation if they needed one (thanks to the good people at the because i can project for the stats). Now, here’s the bad news: less than 25% of Canadians have agreed to donate their organs. Seriously Canada?? Is this saying that 75% of us cannot possibly put ourselves into the shoes of someone who needs an organ donation now? How is it that we could be so short-sighted, cold, lacking empathy and just plain illogical? Here’s another piece of information for you then: you are 6 times more likely to need an organ transplant than to be a donor. Ready to tear your hair out yet?

We must change this story. People like Jim are on a waiting list that doesn’t have to exist. There is no logic to our abysmal donor registration numbers. Share this information as far and wide as you can. Sign up to beadonor in Ontario, and across Canada (not in Canada? Contact us and we’ll help you figure it out.)  Talk to your family about it.

Be inspired by Jim’s story. He’s waiting.

becauseicanprjt

jim charlie sleeping

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Inspiring Beyond our Borders

When we started our campaign to get people to sign up to be a donor, and talk to their families, we focussed on Ontario, Canada, because that’s where Jim lives and that’s where he waits for a new heart. It quickly became clear though that this is not just an Ontario issue. All provinces across Canada are looking for solutions. We’ve also heard from many states across America; Australia; Ireland; the UK and more. They all struggle with this same issue. We know have to start small…..but a little part of us wants to dream big. Like bringing together everyone with the same issue and solving it together. It’s easy to get carried away with grandiose ideas, and that’s great – we’re going all in and want everyone who is committed to organ donation to lend a hand. (Get in touch with us any time!)  Today though, the solution we have at hand is small, and it needs you. Sign up to be a donor. Tell your family. Share the message.

Jim is still waiting. Be inspired. waiting

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Momentum – Keep it Going!

Lately we’ve had a bit of success in spreading the word about how critical it is to be a registered organ donor. We’ve reached almost 37,000 people so far through this blog alone. Hundreds of thousands have “viewed” posts in Facebook and Twitter. Thousands have clicked through to beadonor.ca. Can we keep this going? Something Marah questioned has resonated with us – about whether or not people stop hearing the message after a while. This message isn’t noise in the background – it’s a huge issue. There is no reason that our donor registration numbers should be so low, other than the fact that people just don’t know.

This means that you can make a difference. You can keep this going. You sharing this message may be just what it takes. The message is simple: Be A Donor and Talk to Your Family.

Jim desperately needs a new heart. So many others are on the waiting list for an organ transplant. Be inspired to keep up the momentum. Keep sharing.

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Ripple Effect of the Waiting List

While Jim waits for his new heart, he’s not alone. Of course Marah and their children wait with him, and hope, and step up to do the things he can’t. Stepping up in the most unbelievable way are Marah’s parents, Dave and Lynn. At a time when a well-deserved retirement should be happy and carefree, Dave and Lynn find themselves in the role of primary caregivers once again. They live in the same home now with Jim, Marah and family, Lynn staying with Jim most days. As a retired nurse, Lynn is well-placed to offer support and care. Any event for Marah and Jim’s kids will find Dave behind the wheel – driving to and from, and staying to cheer them on. Marah will tell you they couldn’t do this without their support, and consider themselves lucky.

When you are on the waiting list for an organ transplant, lives are turned upside down. Not just your life – but those around you who love and support you.

Be inspired by Jim’s story. Be a donor. Talk to your family. For Dave and Lynn and all the incredible people supporting someone on the waiting list: share.

lynn and dave

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Desperately in Need of Hope – Spread the Word

A message from Marah:

There comes a point in the waiting where a plea to help save a life feels like a transition to begging to save a life. In trying to continually spread the word of organ donation is there an “enough already” situation where people now tune the message out? Also, organ donation is an uncomfortable subject; when people find out Jim is waiting for a heart it’s usually very awkward. It’s one extreme to another: either they pipe up “I’ve signed my donor card ” or remain silent. It’s the silence worries. We must make organ donation a topic that can be discussed without fear or judgement.

My passion for this subject is Jim; my motivation is saving his life. Organ donation saves lives. Jim and so many others need saving.

For myself and those who have a loved one waiting for a donor, that you’ve taken a moment to read these words offers hope, something of which we are desperately in need. Please share this — it could mean the difference.

I thank you from the bottom of my heart,

Marah

Offer hope for Jim and Marah. Be inspired by his story. Be a donor.

kissing jim

 

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Inspiration

Jim and Marah have put themselves and their reality “out there” to inspire you. Yes, Jim needs a new heart, but they’ve been inspired themselves to help anyone who is waiting for an organ donation. How would you react to a life-threatening situation such as theirs? Would you rail against the fates for handing you an impossible task? Would you make angry demands on the health system for failing you? Would you take to your bed and just give up?

Jim and Marah have chosen to speak up and try to make a difference. They know that this won’t necessarily help Jim, but they are more than confident it will help someone. We are doing all we can to help. Won’t you?

Be inspired by Jim’s story and be a donor. Sign up and talk to your family.

jim_marah cheek

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Gathering Thoughts on Presumed Consent

Yesterday an article from BC caught our eye. It brought our attention back to the concept of “presumed consent” (where everyone would automatically be a potential donor). We talked about this a bit previously. At the time we thought it was a good idea, but not the reality right now, and certainly not the complete solution. It still remains that taking away the requirement to sign up to be a donor alone does not improve the number of organ donations. But (and this is the lightbulb moment), if you remove the requirement to sign up, we potentially remove 1/2 the battle! What remains is the requirement to talk to your family about your wishes – and making that conversation common and natural. (Ok, we recognize this is a huge undertaking all by itself).

There are a few issues …. like the fact that if someone takes the time to sign up to be an organ donor, families may be more likely to honour those wishes. We want to explore this issue a little further – we’ll be gathering information and will bring our findings back here.

In the meantime – this is not our reality. We need you to sign up to be a donor, and talk to your family. Be inspired by Jim’s story.

jimshearts

 

 

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Climbing the Mountain

When many of us learned that Jim would need a new heart, we weren’t aware of the hidden mountain that must be climbed. We didn’t know that generally Canadians simply do not register to be organ donors (only 1 in 4 have done so). We didn’t know that over 1500 people in Ontario alone were also waiting for an organ donation. We never dreamed that Jim would be waiting over 17 months (and still waiting). We couldn’t have guessed that we’d be needed to spread the simple message: be a donor; sign up; tell your family.

Now that we know, we’re in this to make a difference. For Jim, for all the other people waiting for a life-saving organ.

Share the message: sign up to beadonor; talk about it. Be inspired by Jim’s story – we are. jim headshot

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A surprising response

Yesterday, Marah issued a heartfelt plea to share the message of organ donation. Literally thousands of people took her up on her request and shared. It was a wonderful thing, and continues to be today. Out of those thousands though, a few were less impressed. They felt that the message made people feel guilty. Guilty? For what? For not sharing the message? For feeling like they must share the message? Or for not being a donor? Regardless, the semi-provocative message got people talking – a lot of people – and that’s the whole point.

Bottom line: we want you to sign up to be an organ donor, talk to your family about it, and SHARE the message. Nothing too provocative there.

Be inspired by Jim’s story. Be a donor. 400friends

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You won’t share this – but you should

On this, Jim and Marah’s 22nd wedding anniversary, Marah has a message for you. Can you hear her plea? Her frustration? Share this. You must.

The heartbreak of using Facebook as a tool “share” the message of organ donation for those in need is to see an animal post “go viral”. Yesterday, a post on organ donation had 23 likes, and a dozen shares, while a video of a momma bear rescuing her baby hit 1,717,025 likes in less than 24hrs. 100,000 people shared the post. Trillium Gift of Life had 3,732 likes and 1,494 shares……over 5 days.

How can a plea to save my husband’s life be less important than a racoon in Michigan falling off a building? It’s heartbreaking. This isn’t to say that something that made you laugh or smile shouldn’t be passed on or shared. What I’m saying is that the power to share is in our hands. As your cursor hovers over the “like” or “share” link know that it’s not just posting, it’s the possibilities.

SHARE = HOPE

Please, from the bottom of my heart, Marah.

Be inspired. SHARE this message. SHARE Jim’s story. Be a donor. Happy anniversary Marah and Jim.

wedding

 

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